Видео с ютуба Rare Illnesses

Rare disease day 2015: My experience with GPA

Rare disease day 2015: My experience with GPA
What’s Next in Rare Disease Data Collection and Clinical Use - NORD Scientific Symposium

What’s Next in Rare Disease Data Collection and Clinical Use - NORD Scientific Symposium
Rare diseases film aims to raise awareness

Rare diseases film aims to raise awareness
Hot Springs boy with rare disease needs lifesaving transplant

Hot Springs boy with rare disease needs lifesaving transplant
“I’m a rare disease dad.” #menkessyndrome #rarediseaseday 🦓

“I’m a rare disease dad.” #menkessyndrome #rarediseaseday 🦓
Jacqueline Fernandez met a child suffering from a rare disease, showed generosity

Jacqueline Fernandez met a child suffering from a rare disease, showed generosity
Canadian Rare Disease Symposium 2025 | Part II: Preparing for Clinical Trials

Canadian Rare Disease Symposium 2025 | Part II: Preparing for Clinical Trials
Chardan Ophthalmology Conference Series - Rare Disease ft. Ocugen

Chardan Ophthalmology Conference Series - Rare Disease ft. Ocugen
Fun Fact Friday: Noonan Syndrome // Rare Disease Day 2022

Fun Fact Friday: Noonan Syndrome // Rare Disease Day 2022
Rare disease #drugsafety #rarediseases

Rare disease #drugsafety #rarediseases
Rare Disease Day 2025

Rare Disease Day 2025
Rare Disease Day: Peter Frampton

Rare Disease Day: Peter Frampton
A Mom's Journey to Understand Her Daughter's Rare Disease

A Mom's Journey to Understand Her Daughter's Rare Disease
Genomics of Rare Disease 2025 | Keynote by Stephen Kingsmore, Rady Children's Institute, USA

Genomics of Rare Disease 2025 | Keynote by Stephen Kingsmore, Rady Children's Institute, USA
Baltimore woman defies science, runs marathons with rare disease

Baltimore woman defies science, runs marathons with rare disease
Medscape Education Global – Together Caring for Rare Disease

Medscape Education Global – Together Caring for Rare Disease
Episode #41 New born Screening : Line of Defence Against Rare Diseases | ORDI’s Rare Info Series

Episode #41 New born Screening : Line of Defence Against Rare Diseases | ORDI’s Rare Info Series
Recordati Rare Diseases 2022 Cushing's Awareness Day video

Recordati Rare Diseases 2022 Cushing's Awareness Day video
A New Hope In The Fight Against Rare Diseases

A New Hope In The Fight Against Rare Diseases
Understanding Rare Diseases

Understanding Rare Diseases